Welcome to the ERN BOND section on the Education and Training programme!
ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.
These webinars are free to join, however pre-registration is required. The calendar will be displayed on this page.
Webinars allow interaction between speaker(s) and participants: they last about one hour (30 minutes for the presentation(s) and 30 minutes for the Question & Answers).
For those who cannot attend the live event, recordings will be publicly available on this website after the direct streaming event.
By joining the webinar, the attendant accepts the possibility of being recorded and understands that will be publicly available on the website and social media channels of ERN BOND.
A post-webinar anonymous feedback survey will be sent to your email. Please return it as soon as possible and help us in improving the next events.
Webinars updates
Sign up at this link to receive the ERN BOND Newsletters, informing about the next events.
Past Webinars
Check below the past webinars and review them
Gender issues in COVID-19 pandemia
22/06/2021 11:00 CEST Speakers: Maria Luisa Brandi
Target: Patients and Patients Group, Healthcare professionals
EuRR-Bone: what and how?
28/06/2021 17:00 CEST
Speakers: Dr. Natasha M. Appelman-Dijkstra and Dr. Ana L. Priego Zurita
Target: Patients and Patients Group, Healthcare professionals
FD/MAS a joined venture
07/09/2021 16:30 CEST
Speakers: Prof. Michiel van de Sande - Dr. Natasha Appelman-Dijkstra
Target: Patients and Patients Group, Healthcare professionals
Replay not available
Talking about the type 2 collagen disorders
28/09/2021 17:00 CEST
Speakers: Dr. Geert Mortier
Target: Patients and Patients Group, Healthcare professionals
Covid-19 and vaccines
28/01/2020
Speakers: Prof. Ivan Gentile - Dr. Luca Sangiorgi
Target: Patients and Patients Group, Healthcare professionals
Covid-19 and psychological impact
22/02/2020
Speakers: Dr. Marianna Matera - Dr. Manila Boarini
Target: Patients and Patients Group, Healthcare professionals
Human Body Movement & Scan Analyses: in state-of-the-art laboratories, in patients' local area, at home
24/03/2022
Speakers: Ing. Alberto Leardini - Dr. Lisa Berti
Target: Patients and Patients Group, Healthcare professionals
Presentation from the “5th Annual meeting of clinical and molecular diagnosis of skeletal dysplasias: from research to clinical practice”
20/04/2022
Speakers: Dr. Luca Sangiorgi
Target: Patients and Patients Group, Healthcare professionals
Musculoskeletal avatar. A possible solution for creating digital twins in children with skeletal dysplasia
08-09/02/2022
Speakers: Dr. Giovanni Trisolino
Target: Patients and Patients Group, Healthcare professionals
Tools for remote follow-up of rare bone diseases' patients
04/03/2021
Speakers: Gianluca Moro - Giacomo Frisoni - Luca Sangiorgi - Paolo Franceschini
Target: Patients and Patients Group, Healthcare professionals
Covid19 and indications for patients with OI
21/01/2021
Speakers: Andrea Vianello - Luca Sangiorgi
Target: Patients and Patients Group, Healthcare professionals
Biological material in scientific research
18/03/2021
Speakers: Luca Sangiorgi - Luisa Minghetti - Maria Grazia Daidone - Chiara Baldo - Giuseppe Merla
Target: Patients and Patients Group, Healthcare professionals
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The webinars are co-financed by the Connecting Europe Facility of the European Union within the education and training programme of the European Reference Network on rare BONe Diseases.
The European Commission support for the production of this publication does not constitute endorsement of the contents which reflects the views only of the authors, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
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